Grand Canyon Times

Although September has concluded, The White House and Arizona Governor Katie Hobbs have officially declared September as Sickle Cell Awareness Month. These proclamations aim to highlight the significance of raising awareness about sickle cell disease (SCD), particularly in Arizona.

Sickle cell disease is a genetic disorder that causes red blood cells to become rigid and sickle-shaped, potentially blocking blood flow and causing pain, infections, and organ damage. It is a lifelong condition requiring careful management to prevent severe health issues.

In Arizona, every newborn undergoes testing for sickle cell disease through a comprehensive newborn screening program. Early diagnosis is crucial for managing the condition and improving health outcomes. This screening process can also identify if a newborn carries the sickle cell trait. Knowing one's sickle cell trait status is important, especially when planning a family, as it helps inform decisions about potential health risks for future children. More information about Arizona’s newborn screening program can be found at www.aznewborn.com.

For those living with sickle cell disease, the Sickle Cell Foundation of Arizona offers essential support and education. They have recently introduced the 360 SCD Hub app to help patients understand their condition better and track symptoms while empowering them to manage their health effectively.

The proclamations from The White House and Governor Hobbs emphasize that efforts to raise awareness and support families affected by sickle cell disease should continue beyond September. There is a call for ongoing collaboration throughout the year to create an informed community where everyone has access to necessary resources for managing their health.